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What you need to know:

Toddlers (1-3 years)

  • Understanding:
    • Initially, your child will have a better understanding of what is being said to them compared to what they can actually say.Commonly, they will respond to their own name and understand 'no' from 12 months of age.They will then start to understand simple instructions like 'get your shoes' by 18 months.Your child will learn a lot of new words by listening to adults.
  • Language Development:
    • Gradually, their babbling or jargon will start to include real words.At 15 months old, they might be able to say a few words.
    • From 18 months onwards, your child's ability to learn new words explodes to include familiar objects and people, body parts and animal noises.
    • You might have difficulty understanding them initially, especially when they mix babbling with real words, but their speech should start to get clearer from 2 years onwards.
    • By 2 years of age, your toddler might be able to say 'I', 'you' and 'me' and use sentences with 2-3 words e.g. 'Mummy drink'.
    • At 3 years , your child will be able to use sentences of 3-5 words and start asking 'why' to pretty much everything. They will know their name, age and colours. Strangers will probably be able to understand your child most of the time.
  • How else are they communicating?
    • As their language is just developing, they might use a variety of gestures and noises to help their communication, such as:
      • to ask for something (ey contact pointing)
      • to let you know what they think (shake head and push spoon away when they have had enough food)
      • to demonstrate understanding (nod, eye contact etc.)
    • As your child learns to talk, they will start copying how adults talk in conversation. So their voice may go up at the end of a question, or they might start frowning and wagging a finger if they are telling you off.
    • At 3 years old, they will start learning how to take turns when speaking and you might be able to have a chat with them.

Preschool (3-5 years)

  • Understanding:
    • At 3 years of age, they will understand most things you say and will follow instructions with 2-3 steps about familiar things e.g. 'go to your bedroom and get your jumper'.
    • By 5 years of age, they will enjoy jokes and riddles.
  • Language Development:
    • At 3 years old, your child might be able to tell a simple story such as what has really happened during the day. Initially they will need help to put thing in the correct order e.g. Child: 'I go to shop' Parent: 'and what did we buy at the shop?' Child: 'bread'
    • Later, as their imagination develops, they will start telling 'made up' stories.
    • By 4 years of age, your child will speak in longer sentences of around 5-6 words. Other people will understand what she/he is saying most of the time.
    • By 5 years of age, they should be talking fluently. They will understand jokes.

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When should you worry?

12-18 months

12-18 MONTHS

Contact your health visitor or GP if your baby is 12-18 months and they…

  • Have lost skills which they could do before
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own
    • You find it difficult to move your baby’s arms or legs, making it tricky to change their nappy or clothes
  • Feel very floppy when they are awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag their leg or foot when crawling or walking
    • Use one arm to pull to stand more than the other
    • Rarely use one of their arms to pick up toys, or eat and drink
  • Finds it hard to stand or walk, for example:
    • Can’t pull to stand
    • Fall over a lot when standing still
    • Doesn’t cruise (walk while holding on to furniture)
    • Walk on their tiptoes a lot

18-24 months

18-24 MONTHS

Contact your health visitor or GP if your baby is 18-24 months and they…

  • Have lost skills which they could do before
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own
    • You find it difficult to move your baby’s arms or legs, making it tricky to change their nappy or clothes
  • Feel very floppy when they are awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag their leg or foot when crawling or walking
    • Use one arm to pull to stand more than the other
    • Rarely use one of their arms to pick up toys, or eat and drink
  • Find it hard to balance when standing still, or fall over a lot
  • Can’t walk by themselves
  • Walk on their tiptoes a lot
  • Are suddenly unsteady when walking

2 years

2 YEARS

Contact your health visitor or GP if your baby is 2 years and they…

  • Have lost skills which they could do before
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own
    • You find it difficult to move your child’s arms or legs, making it tricky to change their nappy or clothes
  • Feel very floppy when awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag one leg or foot behind them when crawling or walking
    • Rarely use one of their arms to play, eat and drink
  • Find it hard to balance when standing still or fall over a lot
  • Can’t walk by themselves
  • Mostly walk on their tiptoes
  • Are suddenly unsteady when walking
  • Haven’t started to run
  • Move from laying down or sitting to standing by using their hands to push off the ground, and “walk” their hands up their legs until they are standing

3 years

3 YEARS

Contact your health visitor or GP if your baby is 3 years and they…

  • Have lost skills which they could do before 
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own
    • You find it difficult to move your child’s arms or legs, making it tricky to change their clothes
  • Feel very floppy when awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag one leg or foot behind them when walking
    • Rarely uses one of their arms to play, eat and drink
  • Find it hard to balance when standing still or fall over a lot
  • Can’t walk by themselves
  • Mostly walk on their tiptoes
  • Are suddenly unsteady when walking
  • Have not started to jump or run
  • Move from laying down or sitting to standing by using their hands to push off the ground, and “walk” their hands up their legs until they are standing

4 years

4 YEARS

Contact your health visitor or GP if your baby is 4 years and they…

  • Have lost skills which they could do before
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own
    • Find it tricky to change their clothes
  • Feel very floppy when awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag one leg or foot behind them when walking
    • Rarely use one of their arms to play, eat and drink
  • Find it hard to balance when standing still 
  • Suddenly become unsteady when walking
  • Find it hard going upstairs or uphill
  • Trip or fall a lot
  • Walk on tiptoes most of the time
  • Feel pain in their arms or legs
  • Move from laying down or sitting on the floor to standing by using their hands to push off the ground, and “walk” their hands up their legs until they are standing.

5 years

5 YEARS

Contact your health visitor or GP if your baby is 5 years and they…

  • Have lost skills which they could do before
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own 
    • Find it tricky to change their clothes
  • Feel very floppy when awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag one leg or foot behind them when walking
    • Rarely uses one of their arms to play, eat and drink
  • Find it hard to balance, or trip or fall a lot
  • Persistently walk on tiptoes  
  • Suddenly become unsteady when walking
  • Feel pain in their arms or legs
  • Move from laying or sitting on the floor to standing by using their hands to push off the ground, and “walk” their hands up their legs until they are standing.

15 months

Your Child By Fifteen Months

Social/Emotional Milestones

  • Copies other children while playing, like taking toys out of a container when another child does
  • Shows you an object she likes
  • Claps when excited
  • Hugs stuffed doll or other toy
  • Shows you affection (hugs, cuddles, or kisses you)

Language/Communication Milestones

  • Tries to say one or two words besides “mama” or “dada,” like “ba” for ball or “da” for dog
  • Looks at a familiar object when you name it
  • Follows directions given with both a gesture and words. For example, he gives you a toy when you hold out your hand and say, “Give me the toy.”
  • Points to ask for something or to get help

Cognitive Milestones (learning, thinking, problem-solving)

  • Tries to use things the right way, like a phone, cup, or book
  • Stacks at least two small objects, like blocks

Movement/Physical Development Milestones

  • Takes a few steps on his own
  • Uses fingers to feed herself some food

18 months

Your Child By Eighteen Months

Social/Emotional Milestones

  • Moves away from you, but looks to make sure you are close by
  • Points to show you something interesting
  • Puts hands out for you to wash them
  • Looks at a few pages in a book with you
  • Helps you dress him by pushing arm through sleeve or lifting up foot

Language/Communication Milestones

  • Tries to say three or more words besides “mama” or “dada”
  • Follows one-step directions without any gestures, like giving you the toy when you say, “Give it to me.”

Cognitive Milestones (learning, thinking, problem-solving)

  • Copies you doing chores, like sweeping with a broom
  • Plays with toys in a simple way, like pushing a toy car

Movement/Physical Development Milestones

  • Walks without holding on to anyone or anything
  • Scribbles
  • Drinks from a cup without a lid and may spill sometimes
  • Feeds himself with his fingers
  • Tries to use a spoon
  • Climbs on and off a couch or chair without help

2 years

Your Child By Two Years

Social/Emotional Milestones

  • Notices when others are hurt or upset, like pausing or looking sad when someone is crying
  • Looks at your face to see how to react in a new situation

Language/Communication Milestones

  • Points to things in a book when you ask, like “Where is the bear?”
  • Says at least two words together, like “More milk.”
  • Points to at least two body parts when you ask him to show you
  • Uses more gestures than just waving and pointing, like blowing a kiss or nodding yes

Cognitive Milestones (learning, thinking, problem-solving)

  • Holds something in one hand while using the other hand; for example, holding a container and taking the lid off
  • Tries to use switches, knobs, or buttons on a toy
  • Plays with more than one toy at the same time, like putting toy food on a toy plate

Movement/Physical Development Milestones

  • Kicks a ball
  • Runs
  • Walks (not climbs) up a few stairs with or without help
  • Eats with a spoon

2.5 years

Your Child By Thirty Months

Social/Emotional Milestones

  • Plays next to other children and sometimes plays with them
  • Shows you what she can do by saying, “Look at me!”
  • Follows simple routines when told, like helping to pick up toys when you say, “It’s clean-up time.”

Language/Communication Milestones

  • Says about 50 words
  • Says two or more words together, with one action word, like “Doggie run”
  • Names things in a book when you point and ask, “What is this?”
  • Says words like “I,” “me,” or “we”

Cognitive Milestones (learning, thinking, problem-solving)

  • Uses things to pretend, like feeding a block to a doll as if it were food
  • Shows simple problem-solving skills, like standing on a small stool to reach something
  • Follows two-step instructions like “Put the toy down and close the door.”
  • Shows he knows at least one color, like pointing to a red crayon when you ask, “Which one is red?”

Movement/Physical Development Milestones

  • Uses hands to twist things, like turning doorknobs or unscrewing lids
  • Takes some clothes off by himself, like loose pants or an open jacket
  • Jumps off the ground with both feet
  • Turns book pages, one at a time, when you read to her

3 years

Your Child By Three Years

Social/Emotional Milestones

  • Calms down within 10 minutes after you leave her, like at a childcare drop off
  • Notices other children and joins them to play

Language/Communication Milestones

  • Talks with you in conversation using at least two back-and-forth exchanges
  • Asks “who,” “what,” “where,” or “why” questions, like “Where is mommy/daddy?”
  • Says what action is happening in a picture or book when asked, like “running,” “eating,” or “playing”
  • Says first name, when asked
  • Talks well enough for others to understand, most of the time

Cognitive Milestones (learning, thinking, problem-solving)

  • Draws a circle, when you show him how
  • Avoids touching hot objects, like a stove, when you warn her

Movement/Physical Development Milestones

  • Strings items together, like large beads or macaroni
  • Puts on some clothes by himself, like loose pants or a jacket
  • Uses a fork

4 years

Your Child By Four Years

Social/Emotional Milestones

  • Pretends to be something else during play (teacher, superhero, dog)
  • Asks to go play with children if none are around, like “Can I play with Alex?”
  • Comforts others who are hurt or sad, like hugging a crying friend
  • Avoids danger, like not jumping from tall heights at the playground
  • Likes to be a “helper”
  • Changes behavior based on where she is (place of worship, library, playground)

Language/Communication Milestones

  • Says sentences with four or more words
  • Says some words from a song, story, or nursery rhyme
  • Talks about at least one thing that happened during her day, like “I played soccer.”
  • Answers simple questions like “What is a coat for?” or “What is a crayon for?”

Cognitive Milestones (learning, thinking, problem-solving)

  • Names a few colors of items
  • Tells what comes next in a well-known story
  • Draws a person with three or more body parts

Movement/Physical Development Milestones

  • Catches a large ball most of the time
  • Serves herself food or pours water, with adult supervision
  • Unbuttons some buttons
  • Holds crayon or pencil between fingers and thumb (not a fist)

5 years

Your Child By Five Years

Social/Emotional Milestones

  • Follows rules or takes turns when playing games with other children
  • Sings, dances, or acts for you
  • Does simple chores at home, like matching socks or clearing the table after eating

Language/Communication Milestones

  • Tells a story she heard or made up with at least two events. For example, a cat was stuck in a tree and a firefighter saved it
  • Answers simple questions about a book or story after you read or tell it to him
  • Keeps a conversation going with more than three back-and-forth exchanges
  • Uses or recognizes simple rhymes (bat-cat, ball-tall)

Cognitive Milestones (learning, thinking, problem-solving)

  • Counts to 10
  • Names some numbers between 1 and 5 when you point to them
  • Uses words about time, like “yesterday,” “tomorrow,” “morning,” or “night”
  • Pays attention for 5 to 10 minutes during activities. For example, during story time or making arts and crafts (screen time does not count)
  • Writes some letters in her name
  • Names some letters when you point to them

Movement/Physical Development Milestones

  • Buttons some buttons
  • Hops on one foot
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Advice and Guidance

How can I help?

  • Talk with your child, naming and talking about everything and anything. From counting out loud, the steps as you walk down the stairs, to telling them what piece of clothing you are folding when you are doing the laundry. Even if you think your child doesn't understand, talking about what is happening in your daily lives will increase the number of words your child hears. Repetition does help.
  • Build your child's communication skills by:
    • noting and commenting on their interest e.g. 'wow, what is that?'
    • giving them time to respond back to you e.g. pause whilst looking them in the eye.
    • actively listening to what they have to say.
    • model the correct answer. whilst ignoring what was wrong e.g. if they say whilst looking at a bus 'look, bus', you would respond "yes it is a bus"
    • build on what they have said e.g. look it's red bus, what else is red?
  • Sing to them
  • Start reading to them at an early age. Link the words to the pictures in the book and alson in your own lives. As they get older, pointing to the words as you say them helps them understand the link between written and spoken words to develop their skills in literacy.

Click here to watch a short video with more information.

When should I be concerned?

All children are different when it comes to developing language skills. If you feel there is a difference between your child and other child of a similar age, be reassured that most will catch up. However, it is best to seek professional advice if you see any of the following signs:

When your newborn doesn't:

  • respond to sudden loud noises e.g. ambulance siren, dog barking.
  • turn their heads towards the sound itself.
  • isn't making sounds or responding to loud noises.

By 12 months of age if your baby isn't:

  • turning their heads to soft sounds
  • trying to communicate with you in a variety of ways using sounds, gestures, eye contacts, and/or words, particularly when needing help or wanting something.

By 3 years old, if your toddler:

  • can't understand simple instructions/questions e.g. where's daddy?
  • isn't saying about 50 words
  • doesn't use their words and gestures to try and interact with you e.g. to tell you what they want or need, waving to indicated that they are saying goodbye.
  • uses words that they have unusually and which may be out of context e.g. not be able to link what they are saying with what is actually happening at the time and is copying words/phrases and saying them repeatedly
  • isn't combining two or more words together e.g. more drink
  • isn't pointing to objects to share their interest with others by 2 years of age

By 5 years old, if your child:

  • isn't combining words to make longer sentences to tell you what they need e.g. I want snack or unable to share their interests with you e.g. look, a bus
  • isn't understanding longer instruction e.g. pick up your cup and put it in the the sink
  • uses words unusually e.g. they may have more words than you can count, but they don't use them to talk to people, or if they have parrot like repetitive speech or if they continue to speak in a made up language that you can't understand
  • Takes and sues your hand as a means of getting what they want

When starting school:

  • you can't have a chat with them about things which interest them and you e.g. 'what would you like to have for dinner today?' 'What do you think mummy would like to do for her birthday?'

You should be concerned at any age if your child stops doing what they were previously able to do so.

Where can I get help?

If you think your child is having trouble with communicating and talking to you, discuss your concerns with a professional such as a health visitor, GP, nursery/school teacher who can provide advice and consider whether they may require a referral to a speech and language therapist or GP.

Self care and Prevention

Video Showcase

Related Conditions

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Further Information

A

Acute kidney injury

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Allergy

Learn the basics about food allergies, their symptoms and how they are diagnosed. And if you have itchy eyes, a sneezy nose, wheezy chest or queasy stomach, you might have an allergy: find out more

Anaphylaxis

Anaphylaxis (pronounced ana-fill-ax-is) is a severe and potentially life-threatening allergic reaction. Learn more about what you can do to avoid having an anaphylactic reaction or what to do if someone else if having a severe allergic reaction.

Arthritis

Arthritis doesn’t just affect the elderly. Find out more about conditions affecting the bones and joints of children and young people; to hear the experiences of a young person with arthritis, click here. The Centre for Adolescent Rheumatology and the Children’s Chronic Arthritis Association provide extremely useful information for young people.

Asthma

Don’t let having asthma stop you living your life. Learn more about asthma and find ways to help you stay well.

Click here for videos on inhaler technique.

B

Brain tumour

Brain tumours are quite complex - at present, over 130 different types of 'high grade'(cancerous) or 'low grade' (non-cancerous) brain tumours are known. Find key information about brain tumours in young people including symptoms, diagnosis and treatments, and read advice on living with, or caring someone with, a brain tumour.

C

Cancer

7 young people are diagnosed with cancer every day in the UK. You don’t have to face cancer alone - find out about cancer types, treatments and living with cancer as a teen or young adult. This information has been written specifically for you and reviewed by other young people with cancer. Hear the stories of other young people with cancer.

Chronic Fatigue Syndrome

Chronic fatigue syndrome (CFS) is a complicated disorder characterized by extreme fatigue that can't be explained by any underlying medical condition. The fatigue may worsen with physical or mental activity, but doesn't improve with rest.

For more information on CFS and the Specialist Chronic Fatigue (ME) Service for children and young people anywhere in the UK, please click here.

Chronic kidney disease

Chronic kidney disease (CKD) is a lifelong condition. The kidneys gradually stop working as well as they should. This usually happens over many years.

Chronic pain

The Pain Toolkit is for people who live with persistent pain and Healthcare teams who support them. It helps people all over the world self manage persistent pain.

Cleft lip and palate

There are many young people in the UK who are born with a cleft lip or palate. Some of them have shared their stories about everything from school to surgery.

Coeliac Disease

Growing up with coeliac disease, especially in your teenage years, can have its challenges, especially as you eat out more with friends. Don’t be embarrassed about having coeliac disease; it’s part of you and your friends will understand.

Cystic Fibrosis

Cystic fibrosis(CF) is one of the UK's most common life-threatening inherited diseases. Cystic fibrosis is caused by a defective gene. As a result, the internal organs, especially the lungs and digestive system, become clogged with thick sticky mucus resulting in chronic infections and inflammation in the lungs and difficulty digesting food. Find out more…

D

Diabetes

Being a teenager is hard enough, without having Type 1 diabetes. Find out more about successfully living with Type 1 diabetes and getting through your teenage years. Listen to the experiences of young people with diabetes by clicking here. Or, to read a diabetes-inspired comic click here

E

Eczema

‘Why do I have eczema?’ is a question asked by a lot of the young people with eczema. Find out more about eczema or listen to the experiences of other young people with eczema.

Epilepsy

If you’re a teenager with epilepsy, you probably have all sorts of questions about how epilepsy could affect your life. For example, will you be able to go on holiday with friends, go to concerts and clubs and drink alcohol? Or maybe you have a friend, brother or sister who has epilepsy and you just want to understand more about it. Or you can listen to the experiences of a young person with epilepsy by clicking here. Young epilepsy provides great help and support.

F

FSGS and IgM nephropathy

Focal segmental glomerulosclerosis (FSGS) and IgM nephropathy cause nephrotic syndrome. This causes swelling in the body, especially in their face, legs and feet.

G

Glomerulonephritis

Glomerulonephritisis a group of conditions that cause inflammation (swelling) in the kidneys. Children with glomerulonephritis have blood and protein in their urine, and may have swelling in their body, especially in their face and legs. Find out more…

H

Haematuria

Haematuriameans there is blood in the urine (wee). If there is a lot of blood, the urine may be red or dark brown. In most children, haematuria is not serious. In some children, it is a sign that there is a problem with their kidney and these children may need special treatment. Find out more…

Haemolytic Uraemic Syndrome

In haemolytic uraemic syndrome (HUS), the small blood vessels inside the kidneys are damaged. There are changes in the blood and the kidneys stop working properly.

Haemophilia

By the time you are a teenager, you may already be used to living with a bleeding disorder. However not all people with bleeding disorders are diagnosed earlier on in life, and a bleeding disorder may be entirely new for you. The information here should be able to reassure you about your bleeding disorder, and let you get on with the enjoyment of being a teenager..

Heart conditions

If you have a congenital heart condition, you might feel like you don't want to know every detail because it scares you. In fact you're not alone - many adults feel the same way. Find out more…

Henoch- Schonlein purpura (HSP)

Henoch-Schönlein purpura (HSP) is a condition that affects different parts of the body. Tiny blood vessels in the body become inflamed or swollen.

HIV

It’s difficult being a young person with HIV but you’re not alone. Hear the experiences of other young people living with HIV. Find ways of accessing local support as well as the Body & Soul Beyond Boundaries programme.

Click here to watch a video from the BBC called HIV Positive: Seriously, you can't catch it from kissing.

Hydrocephalus

If you’re a teenager or young adult affected by hydrocephalus, it’s important to remember that you’re not alone. You’ll find useful information to help you overcome the different challenges you may face.

Hypertension

Hypertension means that your blood pressure is too high. In some children, hypertension can be a serious condition. It can increase the risk of getting other diseases, especially if the hypertension continues into their adult years. Find out more…

I

Inflammatory Bowel Disease

Crohn’s Disease and Ulcerative Colitis are the two main forms of Inflammatory Bowel Disease, affecting more than 300,000 people in the UK. Yet it is largely a hidden disease, and one that causes stigma, fear and isolation – it’s thought that many people with the condition go undiagnosed and suffer in silence. It doesn’t have to be like this. Learn more….

Info about your child's medication

M

Medical ID and alert products

Don’t let a medical condition change your life. Change the way you deal with it – by living as best you can with the security of a Medi band or Medic alert medical ID bracelet or wristband.

Metabolic conditios

Climb is the leading patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide.

Mitochondrial disease

Mitochondrial Disease is a chronic, genetic disorder that can be inherited in a number of ways. Because there are many forms of mitochondrial disease and therefore Mitochondrial disease presents very differently from individual to individual.

When a person has Mitochondrial Disease the mitochondria in the cells are not producing enough energy. Sometimes they are not very efficient or they do not work at all. Depending on which Mitochondria are affected will depend on which organs are affected.

Activities like running, swimming, cycling or even simple ones likes walking or breathing can be difficult or completely impossible if you are suffering with Mitochondrial Diseases.

For help and for more information, visit the Abel Foundation website by clicking here.

Mitrofanoff

Bladder problems are not a subject that is openly discussed, hence there is a general lack of public knowledge on what it is like to have Mitrofanoff. Mitrofanoff Support offers emotional support and reassurance to anyone who may be about to have, or already has a Mitrofanoff and the people closest to them.

Multicystic dysplastic kidney (MCDK)

A multicystic dysplastic kidney (MCDK) is a kidney that has not developed normally in the womb. Instead of a working kidney, there is a bundle of cysts, which are like sacs filled with liquid. Find out more

Muscular Dystrophy

Living with a neuromuscular condition can be a steep learning curve, but support is available. Find out more…

N

Nephrotic syndrome

In nephrotic syndrome, the kidneys leak too much protein into the urine, leading to a drop in the levels of protein in the blood. This causes swelling in the body, especially in the face, legs and feet. Find out more… About half of children with steroid-sensitive nephrotic syndrome (SSNS) have frequent relapses. This means that although the nephrotic syndrome gets better with steroids, it keeps coming back in a short space of time. Learn more about frequently relapsing nephrotic syndrome.

Neurofibromatosis

Neurofibromatosis type 1 is a condition that causes lumps called neurofibromas to grow on the covering of nerves. Although doctors sometimes call the lumps tumours, they are not cancer. This information sheets offers you some facts and advice to help you.

P

Post-infectious glomerulonephritis (PIGN)

PIGN causes inflammation (swelling) in the kidneys. Young people with PIGN have blood and protein in their urine, and may have swelling in their body, especially around their face and legs. Find out more…

Primary immunodeficiency

If you are a young person with a primary immunodeficiency, there are probably loads of questions you’d like to know the answers to, things you maybe feel a bit embarrassed to ask about or you simply don’t know who to ask. Learn more here…

Proteinuria

Proteinuria means there is an abnormal amount of protein in the urine (wee). Normally there is very little protein that is lost in the urine. Find out more…

R

Renal dysplasia

Renal dysplasia (or kidney dysplasia) means that a kidney does not fully develop in the womb.The affected kidney does not have normal function – which means that it does not work as well as a normal kidney. It is usually smaller than usual, and may have some cysts, which are like sacs filled with liquid. Find out more…

Renal hypoplasia

Renal hypoplasia (or kidney hypoplasia) means that part of a kidney does not fully develop in the womb. The kidney may only be slightly smaller than usual or it may be tiny. Because of its size, it may not work as well as a normal-sized kidney. Find out more…

S

Scoliosis

Advice on what you can do if you have scoliosis or if you have just been diagnosed with it. Find out more…

Sickle Cell Disease

Advice for young people living with sickle cell disease. You are not alone. Click here for more information.

Spina bifida

Spina bifida literally means ‘split spine’. A fault in the development of the spinal cord and surrounding bones (vertebrae) leaves a gap or split in the spine. The spinal cord has not formed properly, and may also be damaged. Find out more

Syncope

Syncope (pronounced sin-co-pee) is a medical term for a blackout that is caused by a sudden lack of blood supply to the brain. Reflex syncope is one of the most common forms of syncope. Find out more…

T

Thalassaemia

Thalassaemia is a complex condition affecting the blood that requires constant monitoring and treatment. However, it is no longer just a disease of childhood; with our current level of knowledge, of treatment, of support and care there is no reason for a young person with thalassaemia to not reach their full potential.

Tuberous Sclerosis

An estimated 1 million people worldwide have TSC. Some will be diagnosed with TSC very early in life whilst others may not be diagnosed until later childhood, adolescence or adulthood. Find out more…

U

Urinary tract infection (UTI)

A urinary tract infection (UTI) is a common infection that may cause you pain when you pee. Sometimes it can result in a kidney infection. Find out more…

V

Von Willebrand Disease

Von Willebrand disease is the most common type of bleeding disorder: it’s estimated that around 1% of the world population may be affected. It affects the blood’s ability to clot and can cause symptoms such as easy bruising, nosebleeds, and heavy periods. It may also be hard to stop bleeding after injury or surgery. Find out more…