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This pack has been produced with by Frimley Health NHS Trust in partnership with Healthier Together

Headaches in children are common. Most of the time they are mild and only happen from time to time.

There are plenty of things you can do to help your child to feel better such as making sure they drink plenty of water, taking regular exercise and ensuring they are sleeping well.

Stress can often play a part in children's headaches, especially the older they get so make sure you have a good chat about what is going on in their life.

Sometimes headaches can be a sign of something more worrying. Please see the table below for some of this things to look out for.

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When should you worry?

12-18 months

12-18 MONTHS

Contact your health visitor or GP if your baby is 12-18 months and they…

  • Have lost skills which they could do before
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own
    • You find it difficult to move your baby’s arms or legs, making it tricky to change their nappy or clothes
  • Feel very floppy when they are awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag their leg or foot when crawling or walking
    • Use one arm to pull to stand more than the other
    • Rarely use one of their arms to pick up toys, or eat and drink
  • Finds it hard to stand or walk, for example:
    • Can’t pull to stand
    • Fall over a lot when standing still
    • Doesn’t cruise (walk while holding on to furniture)
    • Walk on their tiptoes a lot

18-24 months

18-24 MONTHS

Contact your health visitor or GP if your baby is 18-24 months and they…

  • Have lost skills which they could do before
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own
    • You find it difficult to move your baby’s arms or legs, making it tricky to change their nappy or clothes
  • Feel very floppy when they are awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag their leg or foot when crawling or walking
    • Use one arm to pull to stand more than the other
    • Rarely use one of their arms to pick up toys, or eat and drink
  • Find it hard to balance when standing still, or fall over a lot
  • Can’t walk by themselves
  • Walk on their tiptoes a lot
  • Are suddenly unsteady when walking

2 years

2 YEARS

Contact your health visitor or GP if your baby is 2 years and they…

  • Have lost skills which they could do before
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own
    • You find it difficult to move your child’s arms or legs, making it tricky to change their nappy or clothes
  • Feel very floppy when awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag one leg or foot behind them when crawling or walking
    • Rarely use one of their arms to play, eat and drink
  • Find it hard to balance when standing still or fall over a lot
  • Can’t walk by themselves
  • Mostly walk on their tiptoes
  • Are suddenly unsteady when walking
  • Haven’t started to run
  • Move from laying down or sitting to standing by using their hands to push off the ground, and “walk” their hands up their legs until they are standing

3 years

3 YEARS

Contact your health visitor or GP if your baby is 3 years and they…

  • Have lost skills which they could do before 
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own
    • You find it difficult to move your child’s arms or legs, making it tricky to change their clothes
  • Feel very floppy when awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag one leg or foot behind them when walking
    • Rarely uses one of their arms to play, eat and drink
  • Find it hard to balance when standing still or fall over a lot
  • Can’t walk by themselves
  • Mostly walk on their tiptoes
  • Are suddenly unsteady when walking
  • Have not started to jump or run
  • Move from laying down or sitting to standing by using their hands to push off the ground, and “walk” their hands up their legs until they are standing

4 years

4 YEARS

Contact your health visitor or GP if your baby is 4 years and they…

  • Have lost skills which they could do before
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own
    • Find it tricky to change their clothes
  • Feel very floppy when awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag one leg or foot behind them when walking
    • Rarely use one of their arms to play, eat and drink
  • Find it hard to balance when standing still 
  • Suddenly become unsteady when walking
  • Find it hard going upstairs or uphill
  • Trip or fall a lot
  • Walk on tiptoes most of the time
  • Feel pain in their arms or legs
  • Move from laying down or sitting on the floor to standing by using their hands to push off the ground, and “walk” their hands up their legs until they are standing.

5 years

5 YEARS

Contact your health visitor or GP if your baby is 5 years and they…

  • Have lost skills which they could do before
  • Feel very stiff, for example:
    • Hold their arms and legs in the same position, such as always pulling their arm to their chest, or always crossing their legs
    • Find it difficult to change their position on their own 
    • Find it tricky to change their clothes
  • Feel very floppy when awake
  • Move their arms or legs in repetitive, jerky, or strange ways
  • Use one side of their body more than the other, for example:
    • Lean to the side when they sit
    • Drag one leg or foot behind them when walking
    • Rarely uses one of their arms to play, eat and drink
  • Find it hard to balance, or trip or fall a lot
  • Persistently walk on tiptoes  
  • Suddenly become unsteady when walking
  • Feel pain in their arms or legs
  • Move from laying or sitting on the floor to standing by using their hands to push off the ground, and “walk” their hands up their legs until they are standing.

15 months

Your Child By Fifteen Months

Social/Emotional Milestones

  • Copies other children while playing, like taking toys out of a container when another child does
  • Shows you an object she likes
  • Claps when excited
  • Hugs stuffed doll or other toy
  • Shows you affection (hugs, cuddles, or kisses you)

Language/Communication Milestones

  • Tries to say one or two words besides “mama” or “dada,” like “ba” for ball or “da” for dog
  • Looks at a familiar object when you name it
  • Follows directions given with both a gesture and words. For example, he gives you a toy when you hold out your hand and say, “Give me the toy.”
  • Points to ask for something or to get help

Cognitive Milestones (learning, thinking, problem-solving)

  • Tries to use things the right way, like a phone, cup, or book
  • Stacks at least two small objects, like blocks

Movement/Physical Development Milestones

  • Takes a few steps on his own
  • Uses fingers to feed herself some food

18 months

Your Child By Eighteen Months

Social/Emotional Milestones

  • Moves away from you, but looks to make sure you are close by
  • Points to show you something interesting
  • Puts hands out for you to wash them
  • Looks at a few pages in a book with you
  • Helps you dress him by pushing arm through sleeve or lifting up foot

Language/Communication Milestones

  • Tries to say three or more words besides “mama” or “dada”
  • Follows one-step directions without any gestures, like giving you the toy when you say, “Give it to me.”

Cognitive Milestones (learning, thinking, problem-solving)

  • Copies you doing chores, like sweeping with a broom
  • Plays with toys in a simple way, like pushing a toy car

Movement/Physical Development Milestones

  • Walks without holding on to anyone or anything
  • Scribbles
  • Drinks from a cup without a lid and may spill sometimes
  • Feeds himself with his fingers
  • Tries to use a spoon
  • Climbs on and off a couch or chair without help

2 years

Your Child By Two Years

Social/Emotional Milestones

  • Notices when others are hurt or upset, like pausing or looking sad when someone is crying
  • Looks at your face to see how to react in a new situation

Language/Communication Milestones

  • Points to things in a book when you ask, like “Where is the bear?”
  • Says at least two words together, like “More milk.”
  • Points to at least two body parts when you ask him to show you
  • Uses more gestures than just waving and pointing, like blowing a kiss or nodding yes

Cognitive Milestones (learning, thinking, problem-solving)

  • Holds something in one hand while using the other hand; for example, holding a container and taking the lid off
  • Tries to use switches, knobs, or buttons on a toy
  • Plays with more than one toy at the same time, like putting toy food on a toy plate

Movement/Physical Development Milestones

  • Kicks a ball
  • Runs
  • Walks (not climbs) up a few stairs with or without help
  • Eats with a spoon

2.5 years

Your Child By Thirty Months

Social/Emotional Milestones

  • Plays next to other children and sometimes plays with them
  • Shows you what she can do by saying, “Look at me!”
  • Follows simple routines when told, like helping to pick up toys when you say, “It’s clean-up time.”

Language/Communication Milestones

  • Says about 50 words
  • Says two or more words together, with one action word, like “Doggie run”
  • Names things in a book when you point and ask, “What is this?”
  • Says words like “I,” “me,” or “we”

Cognitive Milestones (learning, thinking, problem-solving)

  • Uses things to pretend, like feeding a block to a doll as if it were food
  • Shows simple problem-solving skills, like standing on a small stool to reach something
  • Follows two-step instructions like “Put the toy down and close the door.”
  • Shows he knows at least one color, like pointing to a red crayon when you ask, “Which one is red?”

Movement/Physical Development Milestones

  • Uses hands to twist things, like turning doorknobs or unscrewing lids
  • Takes some clothes off by himself, like loose pants or an open jacket
  • Jumps off the ground with both feet
  • Turns book pages, one at a time, when you read to her

3 years

Your Child By Three Years

Social/Emotional Milestones

  • Calms down within 10 minutes after you leave her, like at a childcare drop off
  • Notices other children and joins them to play

Language/Communication Milestones

  • Talks with you in conversation using at least two back-and-forth exchanges
  • Asks “who,” “what,” “where,” or “why” questions, like “Where is mommy/daddy?”
  • Says what action is happening in a picture or book when asked, like “running,” “eating,” or “playing”
  • Says first name, when asked
  • Talks well enough for others to understand, most of the time

Cognitive Milestones (learning, thinking, problem-solving)

  • Draws a circle, when you show him how
  • Avoids touching hot objects, like a stove, when you warn her

Movement/Physical Development Milestones

  • Strings items together, like large beads or macaroni
  • Puts on some clothes by himself, like loose pants or a jacket
  • Uses a fork

4 years

Your Child By Four Years

Social/Emotional Milestones

  • Pretends to be something else during play (teacher, superhero, dog)
  • Asks to go play with children if none are around, like “Can I play with Alex?”
  • Comforts others who are hurt or sad, like hugging a crying friend
  • Avoids danger, like not jumping from tall heights at the playground
  • Likes to be a “helper”
  • Changes behavior based on where she is (place of worship, library, playground)

Language/Communication Milestones

  • Says sentences with four or more words
  • Says some words from a song, story, or nursery rhyme
  • Talks about at least one thing that happened during her day, like “I played soccer.”
  • Answers simple questions like “What is a coat for?” or “What is a crayon for?”

Cognitive Milestones (learning, thinking, problem-solving)

  • Names a few colors of items
  • Tells what comes next in a well-known story
  • Draws a person with three or more body parts

Movement/Physical Development Milestones

  • Catches a large ball most of the time
  • Serves herself food or pours water, with adult supervision
  • Unbuttons some buttons
  • Holds crayon or pencil between fingers and thumb (not a fist)

5 years

Your Child By Five Years

Social/Emotional Milestones

  • Follows rules or takes turns when playing games with other children
  • Sings, dances, or acts for you
  • Does simple chores at home, like matching socks or clearing the table after eating

Language/Communication Milestones

  • Tells a story she heard or made up with at least two events. For example, a cat was stuck in a tree and a firefighter saved it
  • Answers simple questions about a book or story after you read or tell it to him
  • Keeps a conversation going with more than three back-and-forth exchanges
  • Uses or recognizes simple rhymes (bat-cat, ball-tall)

Cognitive Milestones (learning, thinking, problem-solving)

  • Counts to 10
  • Names some numbers between 1 and 5 when you point to them
  • Uses words about time, like “yesterday,” “tomorrow,” “morning,” or “night”
  • Pays attention for 5 to 10 minutes during activities. For example, during story time or making arts and crafts (screen time does not count)
  • Writes some letters in her name
  • Names some letters when you point to them

Movement/Physical Development Milestones

  • Buttons some buttons
  • Hops on one foot
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Advice and Guidance

What Are Headaches?

Tension Headaches

This is the most common type of headache, and occurs more in teenagers and adults, especially women. It can feel like a constant ache affecting both sides of the head. This is typically accompanied with the neck muscles tightening and pressure behind the eyes. These symptoms usually last less than 15 days out of a single month and the cause is unknown.

Tension headaches can be caused by cold or flu, stress, skipping meals, and dehydration. Some females experience headaches as a symptom of the drop in oestrogen levels just before their periods.

Cluster Headaches

Cluster headaches are severe attacks of pain over one side of the head, often felt around the eye. These headaches are more common in men and typically occur in adulthood. They begin very quickly, and unlike some migraines, have no warning. The pain has been described as a sharp, burning or piercing sensation on one side of the head, around the eye temple and/or face. These attacks can make you feel agitated, anxious and stressed. Cluster headaches are sometimes accompanied by a red watery eye, swelling of one eyelid, constriction of one pupil, sweating and a blocked or runny nostril.

The causes of cluster headaches is still unclear, some research suggests a genetic component, sensory triggers and smoking, whereas others suggest the cause lies in brain activity levels.

Migraine Headaches

Migraines are usually a moderate to severe ‘throbbing’ headache on one side of the head. Many people have symptoms such as feeling nauseated and being sick, as well as increased sensitivity to light and sound.  Migraines are a common health condition which affects around 1:5 women and 1:15 men. They usually being occurring in the late teenage years/early adulthood.

There are several types of migraine:

  1. Migraine with an aura – this is when there is a specific clue that a migraine is about to being, for example seeing flashing lights or spots.
  2. Migraine without an aura – this is when a migraine occurs without any warning signs.
  3. Migraine aura without the accompanying headache – this is also known as a silent migraine; an aura or other migraine symptoms are experienced, but a headache does not occur.

Migraines have been linked to the hormone changes occurring during menstruation. Furthermore, migraines can be triggered by stress, fatigue and the ingestion of some foods including chocolate.

Occasionally, headaches can be a sign of something more worrying. Click here for information about what to look out for.

The Connections Between the Thoughts, Feelings, and Behaviour

Some people experiencing headaches can get caught in an unhelpful cycle. It is important to recognise what this cycle is so we can break it.

Tips: For younger children exploring their emotions using this model, try using a smiley face system.

Physiological Self Help for Headaches

Water

Headaches caused by dehydration may occur after sweating, especially on a hot day or after lots of physical activity! The body loses essential fluids which contribute towards its functioning. Most of the time, the amount of fluid lost is balanced through the consumption of water and fluid-rich foods. However, in some cases, the body loses water quicker than it is replenished. This can lead to dehydration, with one of the main symptoms being a headache. Research has suggested that dehydration is a trigger for migraine, therefore, water is found to be effective in migraine frequency and severity reduction. Drinking too quickly can sometimes cause vomiting  in those with dehydration, so it is best to take slow steps; sucking on an ice cube has been found useful in younger children.

Electrolyte Drinks

Electrolytes are minerals your body requires to function, your body gets them through dietary intake. Dehydration can disrupt the important balance of electrolytes in your body, so replenishing them with a low-sugar sports drink may make you begin to feel better.

Regular Meals

The body needs energy to function, most of the body’s energy comes from the consumption of carbohydrates. The body converts carbohydrates into glucose, which is then transported through the blood into areas where energy is required. The brain requires a constant supply of glucose to function. If glucose levels fall the brain is one of the first organs affected, hence why headaches can appear shortly after skipping meals. Thus, it is important to have regular meals, meeting the ‘Healthy Living Plate’ guidelines. For some, eating regular meals means eating breakfast, having a small snack mid-morning, eating at lunch time, having a mid-afternoon snack, and eating at dinner time. Foods should be healthy and low in sugar.

Menstrual Headaches

Many headaches are linked to changing levels of hormones, specifically oestrogen and progesterone, which occur during menstruation. Whilst some birth control may worsen headaches for some women, they can actually lessen them for others. you suffer from headaches and are using, or planning to use, a hormonal method of contraception, you should discuss this with your GP or a family planning nurse.

Changing How I Cope with Pain: Doing too Much or Too Little

Pacing

Some people who suffer with headaches choose to do less activity. This makes sense; however, it can result in you missing out on important and fun activities. However, we know that missing out can negatively impact your mood. Some people try to stay very active on days they feel better. Again, this approach makes sense but can be counterproductive.  You may push yourself too hard and end up suffering, resulting in exhaustion and low mood. This is referred to as a boom-and-bust pattern:

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Pacing is a skill which enables you to consistently carry out activities without causing excessive tiredness or inactivity. Pacing is the middle ground between doing nothing and doing too much. Over time you may notice that pacing enables you to do more.

  1. Choose an activity, such as seeing your friends or school work.
  2. Measure the length of time you feel physically and emotionally comfortable doing this. Do this at least 3 separate times on good and bad days.
  3. Take the average of these times. This helps you find your comfortable starting point (amount of time) to spend on these activities. Try to stick to this time, no more and no less.
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Remember:

  • Pacing can give you more control.
  • Pacing is about judging when to stop an activity based on time and not mood.
  • The comfortable starting point should be used on both good, and bad days. It is normal to find it difficult to limit yourself on good days.
  • Using a comfortable starting point leads to improved tolerance and achievement.

Changing How I Cope with headaches

Headaches can prevent us from doing things we like, such as going to the cinema, swimming, or spending time with friends. However, you cannot let them stop you, it is important that you practice fighting against avoidance! Ultimately, you need to face your fears if you want to overcome your headaches. It may seem overwhelming in the beginning, however, it is much easier if you break the process down into smaller steps.

Construct a ladder of places or situations that you avoid because of your headaches. At the top of the ladder, state the situation that you are most anxious about. At the bottom of the ladder, put places or situations you avoid , but don’t bother you as much. Give each item a rating of 0-10 according to how anxiety provoking the situation is.

Overcome your headaches by approaching these situations, starting from the bottom of the ladder.  Make sure you write down what you think will happen, before approaching the task, and compare this with what happened.

For a printable version of this exercise, please click here.

Contents: Guided Self Help Worksheets

Calming The Body - Feeling relaxed can help reduce symptom severity

Progressive Muscle Relaxation (PMR)

Muscle tension is commonly associated with stress and anxiety, it is the body’s natural response to potentially dangerous situations. Even when there is no danger, our bodies can still respond in the same way. You may not always realise that your muscles are tense, it may be as subtle as your jaw clenching, or as obvious as your shoulders feeling tight and hunched. PGR is a deep relaxation technique which is based upon the simple practice of tensing one muscle group at a time . This is followed by a relaxation phase with release of tension. This is very useful before bedtime.

Deep Breathing

You can do this standing up, sitting in a supportive chair, or lying down comfortably. Let your breath flow deep into your stomach without forcing it. Breath in through your nose and out through your mouth. Counting to five will help you to breath calmly and regularly. Hold your breath for five seconds, as you exhale say ‘relax’. Repeat this process for 3-5 minutes.

Calming The Mind - Strategies for managing the anxiety and stress that is often associated with abdominal pain

Worry Tree

Worry Trees are helpful in reducing levels of anxiety surrounding both hypothetical situations and current problems.

Visualisation

Help yourself to feel more relaxed by thinking about things that make you feel calm and rested. For example, picturing your favourite place. This can be either independent, or you can take a guided visualisation approach. A guided visual imagery relaxation task has been provided in this pack.

Safe Place Visualisation

A powerful stress reduction and relaxation tool, that can be applied at any time, in any location.

Self-Soothing Strategies

This is a useful technique for remaining grounded in the present, to alleviate symptoms of stress and anxiety.

Developing Coping-Self Talk

These are phrases that you can say to yourself that are supportive.  For example “Just because it has happened before it does not mean it will happen again”

Other Resources

Self care and Prevention

Video Showcase

Related Conditions

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Further Information

A

Acute kidney injury

Acute kidney injury (AKI) is when the kidneys stop working over a short period of time – a few days or a few weeks. It is sometimes called acute kidney failure (AKF) or acute renal failure (ARF).

Allergy

Learn the basics about food allergies, their symptoms and how they are diagnosed. And if you have itchy eyes, a sneezy nose, wheezy chest or queasy stomach, you might have an allergy: find out more

Anaphylaxis

Anaphylaxis (pronounced ana-fill-ax-is) is a severe and potentially life-threatening allergic reaction. Learn more about what you can do to avoid having an anaphylactic reaction or what to do if someone else if having a severe allergic reaction.

Arthritis

Arthritis doesn’t just affect the elderly. Find out more about conditions affecting the bones and joints of children and young people; to hear the experiences of a young person with arthritis, click here. The Centre for Adolescent Rheumatology and the Children’s Chronic Arthritis Association provide extremely useful information for young people.

Asthma

Don’t let having asthma stop you living your life. Learn more about asthma and find ways to help you stay well.

Click here for videos on inhaler technique.

B

Brain tumour

Brain tumours are quite complex - at present, over 130 different types of 'high grade'(cancerous) or 'low grade' (non-cancerous) brain tumours are known. Find key information about brain tumours in young people including symptoms, diagnosis and treatments, and read advice on living with, or caring someone with, a brain tumour.

C

Cancer

7 young people are diagnosed with cancer every day in the UK. You don’t have to face cancer alone - find out about cancer types, treatments and living with cancer as a teen or young adult. This information has been written specifically for you and reviewed by other young people with cancer. Hear the stories of other young people with cancer.

Chronic Fatigue Syndrome

Chronic fatigue syndrome (CFS) is a complicated disorder characterized by extreme fatigue that can't be explained by any underlying medical condition. The fatigue may worsen with physical or mental activity, but doesn't improve with rest.

For more information on CFS and the Specialist Chronic Fatigue (ME) Service for children and young people anywhere in the UK, please click here.

Chronic kidney disease

Chronic kidney disease (CKD) is a lifelong condition. The kidneys gradually stop working as well as they should. This usually happens over many years.

Chronic pain

The Pain Toolkit is for people who live with persistent pain and Healthcare teams who support them. It helps people all over the world self manage persistent pain.

Cleft lip and palate

There are many young people in the UK who are born with a cleft lip or palate. Some of them have shared their stories about everything from school to surgery.

Coeliac Disease

Growing up with coeliac disease, especially in your teenage years, can have its challenges, especially as you eat out more with friends. Don’t be embarrassed about having coeliac disease; it’s part of you and your friends will understand.

Cystic Fibrosis

Cystic fibrosis(CF) is one of the UK's most common life-threatening inherited diseases. Cystic fibrosis is caused by a defective gene. As a result, the internal organs, especially the lungs and digestive system, become clogged with thick sticky mucus resulting in chronic infections and inflammation in the lungs and difficulty digesting food. Find out more…

D

Diabetes

Being a teenager is hard enough, without having Type 1 diabetes. Find out more about successfully living with Type 1 diabetes and getting through your teenage years. Listen to the experiences of young people with diabetes by clicking here. Or, to read a diabetes-inspired comic click here

E

Eczema

‘Why do I have eczema?’ is a question asked by a lot of the young people with eczema. Find out more about eczema or listen to the experiences of other young people with eczema.

Epilepsy

If you’re a teenager with epilepsy, you probably have all sorts of questions about how epilepsy could affect your life. For example, will you be able to go on holiday with friends, go to concerts and clubs and drink alcohol? Or maybe you have a friend, brother or sister who has epilepsy and you just want to understand more about it. Or you can listen to the experiences of a young person with epilepsy by clicking here. Young epilepsy provides great help and support.

F

FSGS and IgM nephropathy

Focal segmental glomerulosclerosis (FSGS) and IgM nephropathy cause nephrotic syndrome. This causes swelling in the body, especially in their face, legs and feet.

G

Glomerulonephritis

Glomerulonephritisis a group of conditions that cause inflammation (swelling) in the kidneys. Children with glomerulonephritis have blood and protein in their urine, and may have swelling in their body, especially in their face and legs. Find out more…

H

Haematuria

Haematuriameans there is blood in the urine (wee). If there is a lot of blood, the urine may be red or dark brown. In most children, haematuria is not serious. In some children, it is a sign that there is a problem with their kidney and these children may need special treatment. Find out more…

Haemolytic Uraemic Syndrome

In haemolytic uraemic syndrome (HUS), the small blood vessels inside the kidneys are damaged. There are changes in the blood and the kidneys stop working properly.

Haemophilia

By the time you are a teenager, you may already be used to living with a bleeding disorder. However not all people with bleeding disorders are diagnosed earlier on in life, and a bleeding disorder may be entirely new for you. The information here should be able to reassure you about your bleeding disorder, and let you get on with the enjoyment of being a teenager..

Heart conditions

If you have a congenital heart condition, you might feel like you don't want to know every detail because it scares you. In fact you're not alone - many adults feel the same way. Find out more…

Henoch- Schonlein purpura (HSP)

Henoch-Schönlein purpura (HSP) is a condition that affects different parts of the body. Tiny blood vessels in the body become inflamed or swollen.

HIV

It’s difficult being a young person with HIV but you’re not alone. Hear the experiences of other young people living with HIV. Find ways of accessing local support as well as the Body & Soul Beyond Boundaries programme.

Click here to watch a video from the BBC called HIV Positive: Seriously, you can't catch it from kissing.

Hydrocephalus

If you’re a teenager or young adult affected by hydrocephalus, it’s important to remember that you’re not alone. You’ll find useful information to help you overcome the different challenges you may face.

Hypertension

Hypertension means that your blood pressure is too high. In some children, hypertension can be a serious condition. It can increase the risk of getting other diseases, especially if the hypertension continues into their adult years. Find out more…

I

Inflammatory Bowel Disease

Crohn’s Disease and Ulcerative Colitis are the two main forms of Inflammatory Bowel Disease, affecting more than 300,000 people in the UK. Yet it is largely a hidden disease, and one that causes stigma, fear and isolation – it’s thought that many people with the condition go undiagnosed and suffer in silence. It doesn’t have to be like this. Learn more….

Info about your child's medication

M

Medical ID and alert products

Don’t let a medical condition change your life. Change the way you deal with it – by living as best you can with the security of a Medi band or Medic alert medical ID bracelet or wristband.

Metabolic conditios

Climb is the leading patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide.

Mitochondrial disease

Mitochondrial Disease is a chronic, genetic disorder that can be inherited in a number of ways. Because there are many forms of mitochondrial disease and therefore Mitochondrial disease presents very differently from individual to individual.

When a person has Mitochondrial Disease the mitochondria in the cells are not producing enough energy. Sometimes they are not very efficient or they do not work at all. Depending on which Mitochondria are affected will depend on which organs are affected.

Activities like running, swimming, cycling or even simple ones likes walking or breathing can be difficult or completely impossible if you are suffering with Mitochondrial Diseases.

For help and for more information, visit the Abel Foundation website by clicking here.

Mitrofanoff

Bladder problems are not a subject that is openly discussed, hence there is a general lack of public knowledge on what it is like to have Mitrofanoff. Mitrofanoff Support offers emotional support and reassurance to anyone who may be about to have, or already has a Mitrofanoff and the people closest to them.

Multicystic dysplastic kidney (MCDK)

A multicystic dysplastic kidney (MCDK) is a kidney that has not developed normally in the womb. Instead of a working kidney, there is a bundle of cysts, which are like sacs filled with liquid. Find out more

Muscular Dystrophy

Living with a neuromuscular condition can be a steep learning curve, but support is available. Find out more…

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Nephrotic syndrome

In nephrotic syndrome, the kidneys leak too much protein into the urine, leading to a drop in the levels of protein in the blood. This causes swelling in the body, especially in the face, legs and feet. Find out more… About half of children with steroid-sensitive nephrotic syndrome (SSNS) have frequent relapses. This means that although the nephrotic syndrome gets better with steroids, it keeps coming back in a short space of time. Learn more about frequently relapsing nephrotic syndrome.

Neurofibromatosis

Neurofibromatosis type 1 is a condition that causes lumps called neurofibromas to grow on the covering of nerves. Although doctors sometimes call the lumps tumours, they are not cancer. This information sheets offers you some facts and advice to help you.

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Post-infectious glomerulonephritis (PIGN)

PIGN causes inflammation (swelling) in the kidneys. Young people with PIGN have blood and protein in their urine, and may have swelling in their body, especially around their face and legs. Find out more…

Primary immunodeficiency

If you are a young person with a primary immunodeficiency, there are probably loads of questions you’d like to know the answers to, things you maybe feel a bit embarrassed to ask about or you simply don’t know who to ask. Learn more here…

Proteinuria

Proteinuria means there is an abnormal amount of protein in the urine (wee). Normally there is very little protein that is lost in the urine. Find out more…

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Renal dysplasia

Renal dysplasia (or kidney dysplasia) means that a kidney does not fully develop in the womb.The affected kidney does not have normal function – which means that it does not work as well as a normal kidney. It is usually smaller than usual, and may have some cysts, which are like sacs filled with liquid. Find out more…

Renal hypoplasia

Renal hypoplasia (or kidney hypoplasia) means that part of a kidney does not fully develop in the womb. The kidney may only be slightly smaller than usual or it may be tiny. Because of its size, it may not work as well as a normal-sized kidney. Find out more…

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Scoliosis

Advice on what you can do if you have scoliosis or if you have just been diagnosed with it. Find out more…

Sickle Cell Disease

Advice for young people living with sickle cell disease. You are not alone. Click here for more information.

Spina bifida

Spina bifida literally means ‘split spine’. A fault in the development of the spinal cord and surrounding bones (vertebrae) leaves a gap or split in the spine. The spinal cord has not formed properly, and may also be damaged. Find out more

Syncope

Syncope (pronounced sin-co-pee) is a medical term for a blackout that is caused by a sudden lack of blood supply to the brain. Reflex syncope is one of the most common forms of syncope. Find out more…

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Thalassaemia

Thalassaemia is a complex condition affecting the blood that requires constant monitoring and treatment. However, it is no longer just a disease of childhood; with our current level of knowledge, of treatment, of support and care there is no reason for a young person with thalassaemia to not reach their full potential.

Tuberous Sclerosis

An estimated 1 million people worldwide have TSC. Some will be diagnosed with TSC very early in life whilst others may not be diagnosed until later childhood, adolescence or adulthood. Find out more…

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Urinary tract infection (UTI)

A urinary tract infection (UTI) is a common infection that may cause you pain when you pee. Sometimes it can result in a kidney infection. Find out more…

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Von Willebrand Disease

Von Willebrand disease is the most common type of bleeding disorder: it’s estimated that around 1% of the world population may be affected. It affects the blood’s ability to clot and can cause symptoms such as easy bruising, nosebleeds, and heavy periods. It may also be hard to stop bleeding after injury or surgery. Find out more…