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Both parents and teens need to bear in mind that young people are struggling to make sense of who they are and where they fit in. Their online presence is a vital part of that. Teens may also have a different sense than their parents of where the boundaries lie – but both young people and parents need to be streetwise - being online is not wholly controllable and children and young people need to have the same levels of alertness and judgement that they would in any public place. It’s really important that they know:

  • Stuff stays around – online content lasts
  • It’s very visible – there is potential for a huge audience for our teens’ mistakes
  • It can go viral – there’s a chance that images or messages could spread rapidly
  • It’s searchable – people can look up

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When should you worry?

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Advice and Guidance

Digital Parenting Tips

  • There’s no substitute for talking – it’s good to talk to your child about what they do in the online world.
  • Try out the technologies your child enjoys - download some of their music and have a go at games they like.
  • Talk to friends and family about how they manage their children's digital lives.
  • Remind older siblings that websites they use may not be suitable for younger brothers and sisters.
  • Make digital issues part of everyday conversation - talking about subjects like cyberbullying, sexting and copyright infringement.
  • When you're talking about bullying, sex and relationships and other issues, don't forget to include the online aspects.
  • Talk to your children about whether the issues they face are different online and offline - or how online and offline work together to complicate their lives.
  • Don't be afraid to set boundaries and rules.
  • Your digital use is a model for your child – if you check for emails and social media posts all of the time, your child is likely to do the same.

You can find out more on Parent info.

The Digital 5 A Day Campaign provides a simple framework that reflects the concerns of parents/ carers as well as children’s behaviours and needs. It gives children and parents easy to follow, practical steps to achieve a healthy and balanced digital diet.

Click here to read about 'lurking trolls' online.

Children need boundaries to help them grow into respectful, confident and productive adults. Limits help children feel safe and contained, but young people also need freedom to try things out, make mistakes and develop their independence. The boundaries we set help children learn to set limits for themselves and develop their self-discipline.

Boundaries are equally important when it comes to technology. The digital world is so exciting for young people that they’ll probably need your help to manage things like finding a reasonable balance between online and offline time. Some boundaries will be non-negotiable, especially when it comes to the safety of your child and others. Others will be more flexible – you may, for instance, want to set different limits on screen time during exams than over school holidays.

The key things to remember when setting your boundaries are:

  • Know your child Get to know what is normal at each age and stage of your child's development. Setting boundaries that work will be much easier if your expectations of how they should behave match where they are developmentally. For example, don’t expect young children to be able to switch off their games at a moment’s notice – they often find it easier to disconnect if given a ten-minute warning.
  • Stay consistent Children need clear limits and boundaries. They will not thrive or survive without them, and neither will you! Rules that are clear and simple and are easier to stick to. Children’s memories aren’t that good so you may find yourself repeating them. Make sure that they know what is expected of them and what the consequences will be if the rules are broken.
  • Allow room for negotiation Children are more likely to stick to the boundaries they help create. Making sure they know the reasons behind rules will help prepare them to regulate their own behaviour as they grow up. Talk to your children about how you expect them to behave and give them the chance to voice their opinions. Let them know that some rules are non-negotiable – like being careful who you talk to online – while others can be discussed. Pick your battles carefully and don't over burden your child with too many rules.
  • Recognise the good behaviours Try not to fall into the trap of always focusing on the negative. Recognising when things are good and your children are following the rules and sticking to the boundaries – especially if they’ve found this hard before – will encourage them to keep that up.

You can find out more on Parent info.

Social Media - A Parent's Guide

Social networking is a massive part of young people’s lives. It can sometimes seem as though apps like Snapchat, Instagram, Vine, Facebook and Twitter take up most of a typical teen’s waking hours.

As a parent, it’s natural to worry about what your child does on social media and the amount of time they spend doing it. If you’re not active on Snapchat yourself, it can be hard to understand the allure of sending and viewing pictures designed to self-destruct. And even if you do use some of the major social networks, it often seems like new ones are popping up every minute.

But so many of the things you’ll have to think about when helping your child enjoy social media are similar to the things you think about in their offline friendships – are they getting too hung up on what other people think? Are their friends pressuring them or undermining their confidence? And of course, there are some specific issues that come with socialising online.

Here are a few tips to help you and your child navigate the world of social media:

Age limits - Most social media has a minimum age - the most common one by far is 13. It’s not necessarily a judgement on how age-appropriate the service is so you might think your child is ready at a younger age, or should wait until they’re even older. Still, it’s important to remember that sites and apps that are 13+ may not have measures in place to protect younger children, or could allow content that’s aimed at an older age group.

Set some ground rules - Especially when your child first starts using social media, it’s a good idea to talk about what is and isn’t allowed. For instance, you might be happy for your child to have a Facebook account, but only want them to accept friends they know in real life.

Know the tools - Safety tools and privacy settings are an important part of using social media responsibly. Talk to your child about how to find blocking and reporting tools and privacy settings on their favourite apps, and why it's a good idea to use them.

Comparing yourself to others - We tend to put our best face forward online. No one wants to post pictures of when their weekend away got rained out and they spent the whole time moping indoors. But it’s easy to get a bit down on yourself after scrolling through a feed of pictures of all your friends having a great time. And depending on who your child follows, there might well be some unattainably gorgeous celebrities thrown in for good measure. Your child will need to think carefully about what they see on social media and remember that no one is as perfect as their Instagram account would suggest.

What others think about you - Everyone likes to be appreciated and it feels good when friends like or share your posts on social media. It’s also easy for teens and young people to get too preoccupied with what their peers think of them. This natural insecurity plus easily quantifiable measures of popularity, like number of Facebook friends or likes on a selfie, can be a tricky mix. Make sure your child knows you’re always there for them if it ever feels like they’ve got no friends, and remind them of all the things they’re good at and loved for offline. If your child is one of the few with thousands of adoring followers, talk about how no one can please everyone all the time. It’s risky to tie your sense of self too closely to other people’s opinions.

Bullying - Some people do use social media specifically to bully others. Whether it’s cruel comments on pictures, nasty messages or a dedicated hate group, online bullying can be very hurtful and can feel harder to escape than offline bullying. Fortunately, just about all the major social media platforms come with tools for blocking other users and reporting abuse. Find out more information on tackling online bullying. You should also make sure your child knows how – and how not – to treat other people online. Something that seems like a harmless joke to one group of friends could end up really hurting someone else.

Digital footprint - Your children have probably heard it all before, but it’s still important to remind them that what goes online stays online. Making hurtful comments or posting compromising pictures could give people the wrong idea about who they really are, and could even affect their school and work options later in life.

Don’t forget the positives - Your child’s digital footprint doesn’t have to be a risk to be managed. Using social media positively and creatively can help them build an online reputation to be proud of. Lots of worthwhile causes use social media to campaign and raise awareness, and your child can use it to get involved in something they care about. It can also be a useful tool for staying informed, making professional connections and keeping in touch with friends and family.

Stay involved - You don’t have to know about every new app that’s popular with teens but it’s smart to have a general sense of what your child gets up to. You probably want to know where your child goes and what they do with friends in the offline world – it’s the same thing online.

Sexting

What is sexting?

  • Exchanging images of a sexual nature with a boyfriend or girlfriend
  • Sharing images of a sexual nature with someone you like
  • Passing on images of a sexual nature to groups of friends without permission

Research by Plymouth University found that 40% of 14-16 year-olds said they had friends who had engaged in this kind of texting.

  • 20% of them didn't think there was anything wrong with sending images involving full nudity
  • 40% thought going topless was acceptable

What should you be concerned about?

Most of us made mistakes in our teenage years – that’s part of growing up. However, our mistakes weren’t recorded for ‘safekeeping’! These days, young people record their lives on a minute-by-minute basis. The images they create can be copied, manipulated, posted online and sent to other people in a matter of seconds. Ex-partners have been known to pass on images after a relationship has come to an end, as a means of revenge.

You - or your child - could be breaking the law by taking, holding or sharing indecent images of a minor. And if these images are stored on a family computer, you, as a parent, could be implicated. Any image of a person under-18 sent may constitute an indecent image of a child, in legal terms, and be prosecutable under the Protection of Children Act 1978.

The police are concerned that sex offenders search for these kinds of images and may use them to blackmail the subjects.

What can you do?

  • Talk to children about the fact that images, once online, are there for all time - and you have no control over what happens to them.
  • Urge your child to think before they post.
  • Warn them against passing on images of others.
  • Remember that it's normal for teenagers to do unwise things - how daft would you have been if you'd had a smart phone in your pocket?

Reporting offensive or Illegal online activity

Hateful or sexually inappropriate content

  • You can report directly to the content provider, such as a social media or online video provider, asking them to remove hate-filled or overly sexualised content.
  • Most social media platforms have simple processes in place for reporting inappropriate content. Try searching for 'Report', or look through their terms and conditions, or 'Help' section.
  • True Vision is a police-funded site that provides information about hate crime. You can report all forms of hate crime, including online content, at www.report-it.org.uk. This includes racial, homophobic, transphobic, religious or disability hate crime.

Bullying

Some people do use social media specifically to bully others. Whether it’s cruel comments on pictures, nasty messages or a dedicated hate group, online bullying can be very hurtful and can feel harder to escape than offline bullying. Fortunately, just about all the major social media platforms come with tools for blocking other users and reporting abuse. Visit www.antibullyingpro.com for more information on tackling online bullying.

Mobile phone content

Report any usnitable online content (film, still images or even plain text) that your child sees using their mobile phone to your mobile operator. If the mobile operator requires further advice, the query will be passed to the British Board of Film Classification.

Inappropriate contact with an adult online

If you know or suspect your child has been communicating with an adult online who has tried to do any of the following, report it to CEOP, part of the National Crime Agency:

  • talked about sex or other inappropriate sexual activity;
  • asked them to do something that makes them feel uncomfortable, such as send them a naked or partially-clothed image;
  • asked them to meet them offline;
  • asked them to lie to their parents about, or tried to hide, their online relationship.

Images of child sexual abuse

Sadly, anyone can stumble across online child sexual abuse images and videos if you do, you can make an anonymous and confidential report to the Internet Watch Foundation at www.iwf.org.uk

You can find out more on Parent info.

Self care and Prevention

Video Showcase

Related Conditions

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Further Information

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Acute kidney injury

Acute kidney injury (AKI) is when the kidneys stop working over a short period of time – a few days or a few weeks. It is sometimes called acute kidney failure (AKF) or acute renal failure (ARF).

Allergy

Learn the basics about food allergies, their symptoms and how they are diagnosed. And if you have itchy eyes, a sneezy nose, wheezy chest or queasy stomach, you might have an allergy: find out more

Anaphylaxis

Anaphylaxis (pronounced ana-fill-ax-is) is a severe and potentially life-threatening allergic reaction. Learn more about what you can do to avoid having an anaphylactic reaction or what to do if someone else if having a severe allergic reaction.

Arthritis

Arthritis doesn’t just affect the elderly. Find out more about conditions affecting the bones and joints of children and young people; to hear the experiences of a young person with arthritis, click here. The Centre for Adolescent Rheumatology and the Children’s Chronic Arthritis Association provide extremely useful information for young people.

Asthma

Don’t let having asthma stop you living your life. Learn more about asthma and find ways to help you stay well.

Click here for videos on inhaler technique.

B

Brain tumour

Brain tumours are quite complex - at present, over 130 different types of 'high grade'(cancerous) or 'low grade' (non-cancerous) brain tumours are known. Find key information about brain tumours in young people including symptoms, diagnosis and treatments, and read advice on living with, or caring someone with, a brain tumour.

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Cancer

7 young people are diagnosed with cancer every day in the UK. You don’t have to face cancer alone - find out about cancer types, treatments and living with cancer as a teen or young adult. This information has been written specifically for you and reviewed by other young people with cancer. Hear the stories of other young people with cancer.

Chronic Fatigue Syndrome

Chronic fatigue syndrome (CFS) is a complicated disorder characterized by extreme fatigue that can't be explained by any underlying medical condition. The fatigue may worsen with physical or mental activity, but doesn't improve with rest.

For more information on CFS and the Specialist Chronic Fatigue (ME) Service for children and young people anywhere in the UK, please click here.

Chronic kidney disease

Chronic kidney disease (CKD) is a lifelong condition. The kidneys gradually stop working as well as they should. This usually happens over many years.

Chronic pain

The Pain Toolkit is for people who live with persistent pain and Healthcare teams who support them. It helps people all over the world self manage persistent pain.

Cleft lip and palate

There are many young people in the UK who are born with a cleft lip or palate. Some of them have shared their stories about everything from school to surgery.

Coeliac Disease

Growing up with coeliac disease, especially in your teenage years, can have its challenges, especially as you eat out more with friends. Don’t be embarrassed about having coeliac disease; it’s part of you and your friends will understand.

Cystic Fibrosis

Cystic fibrosis(CF) is one of the UK's most common life-threatening inherited diseases. Cystic fibrosis is caused by a defective gene. As a result, the internal organs, especially the lungs and digestive system, become clogged with thick sticky mucus resulting in chronic infections and inflammation in the lungs and difficulty digesting food. Find out more…

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Diabetes

Being a teenager is hard enough, without having Type 1 diabetes. Find out more about successfully living with Type 1 diabetes and getting through your teenage years. Listen to the experiences of young people with diabetes by clicking here. Or, to read a diabetes-inspired comic click here

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Eczema

‘Why do I have eczema?’ is a question asked by a lot of the young people with eczema. Find out more about eczema or listen to the experiences of other young people with eczema.

Epilepsy

If you’re a teenager with epilepsy, you probably have all sorts of questions about how epilepsy could affect your life. For example, will you be able to go on holiday with friends, go to concerts and clubs and drink alcohol? Or maybe you have a friend, brother or sister who has epilepsy and you just want to understand more about it. Or you can listen to the experiences of a young person with epilepsy by clicking here. Young epilepsy provides great help and support.

F

FSGS and IgM nephropathy

Focal segmental glomerulosclerosis (FSGS) and IgM nephropathy cause nephrotic syndrome. This causes swelling in the body, especially in their face, legs and feet.

G

Glomerulonephritis

Glomerulonephritisis a group of conditions that cause inflammation (swelling) in the kidneys. Children with glomerulonephritis have blood and protein in their urine, and may have swelling in their body, especially in their face and legs. Find out more…

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Haematuria

Haematuriameans there is blood in the urine (wee). If there is a lot of blood, the urine may be red or dark brown. In most children, haematuria is not serious. In some children, it is a sign that there is a problem with their kidney and these children may need special treatment. Find out more…

Haemolytic Uraemic Syndrome

In haemolytic uraemic syndrome (HUS), the small blood vessels inside the kidneys are damaged. There are changes in the blood and the kidneys stop working properly.

Haemophilia

By the time you are a teenager, you may already be used to living with a bleeding disorder. However not all people with bleeding disorders are diagnosed earlier on in life, and a bleeding disorder may be entirely new for you. The information here should be able to reassure you about your bleeding disorder, and let you get on with the enjoyment of being a teenager..

Heart conditions

If you have a congenital heart condition, you might feel like you don't want to know every detail because it scares you. In fact you're not alone - many adults feel the same way. Find out more…

Henoch- Schonlein purpura (HSP)

Henoch-Schönlein purpura (HSP) is a condition that affects different parts of the body. Tiny blood vessels in the body become inflamed or swollen.

HIV

It’s difficult being a young person with HIV but you’re not alone. Hear the experiences of other young people living with HIV. Find ways of accessing local support as well as the Body & Soul Beyond Boundaries programme.

Click here to watch a video from the BBC called HIV Positive: Seriously, you can't catch it from kissing.

Hydrocephalus

If you’re a teenager or young adult affected by hydrocephalus, it’s important to remember that you’re not alone. You’ll find useful information to help you overcome the different challenges you may face.

Hypertension

Hypertension means that your blood pressure is too high. In some children, hypertension can be a serious condition. It can increase the risk of getting other diseases, especially if the hypertension continues into their adult years. Find out more…

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Inflammatory Bowel Disease

Crohn’s Disease and Ulcerative Colitis are the two main forms of Inflammatory Bowel Disease, affecting more than 300,000 people in the UK. Yet it is largely a hidden disease, and one that causes stigma, fear and isolation – it’s thought that many people with the condition go undiagnosed and suffer in silence. It doesn’t have to be like this. Learn more….

Info about your child's medication

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Medical ID and alert products

Don’t let a medical condition change your life. Change the way you deal with it – by living as best you can with the security of a Medi band or Medic alert medical ID bracelet or wristband.

Metabolic conditios

Climb is the leading patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide.

Mitochondrial disease

Mitochondrial Disease is a chronic, genetic disorder that can be inherited in a number of ways. Because there are many forms of mitochondrial disease and therefore Mitochondrial disease presents very differently from individual to individual.

When a person has Mitochondrial Disease the mitochondria in the cells are not producing enough energy. Sometimes they are not very efficient or they do not work at all. Depending on which Mitochondria are affected will depend on which organs are affected.

Activities like running, swimming, cycling or even simple ones likes walking or breathing can be difficult or completely impossible if you are suffering with Mitochondrial Diseases.

For help and for more information, visit the Abel Foundation website by clicking here.

Mitrofanoff

Bladder problems are not a subject that is openly discussed, hence there is a general lack of public knowledge on what it is like to have Mitrofanoff. Mitrofanoff Support offers emotional support and reassurance to anyone who may be about to have, or already has a Mitrofanoff and the people closest to them.

Multicystic dysplastic kidney (MCDK)

A multicystic dysplastic kidney (MCDK) is a kidney that has not developed normally in the womb. Instead of a working kidney, there is a bundle of cysts, which are like sacs filled with liquid. Find out more

Muscular Dystrophy

Living with a neuromuscular condition can be a steep learning curve, but support is available. Find out more…

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Nephrotic syndrome

In nephrotic syndrome, the kidneys leak too much protein into the urine, leading to a drop in the levels of protein in the blood. This causes swelling in the body, especially in the face, legs and feet. Find out more… About half of children with steroid-sensitive nephrotic syndrome (SSNS) have frequent relapses. This means that although the nephrotic syndrome gets better with steroids, it keeps coming back in a short space of time. Learn more about frequently relapsing nephrotic syndrome.

Neurofibromatosis

Neurofibromatosis type 1 is a condition that causes lumps called neurofibromas to grow on the covering of nerves. Although doctors sometimes call the lumps tumours, they are not cancer. This information sheets offers you some facts and advice to help you.

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Post-infectious glomerulonephritis (PIGN)

PIGN causes inflammation (swelling) in the kidneys. Young people with PIGN have blood and protein in their urine, and may have swelling in their body, especially around their face and legs. Find out more…

Primary immunodeficiency

If you are a young person with a primary immunodeficiency, there are probably loads of questions you’d like to know the answers to, things you maybe feel a bit embarrassed to ask about or you simply don’t know who to ask. Learn more here…

Proteinuria

Proteinuria means there is an abnormal amount of protein in the urine (wee). Normally there is very little protein that is lost in the urine. Find out more…

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Renal dysplasia

Renal dysplasia (or kidney dysplasia) means that a kidney does not fully develop in the womb.The affected kidney does not have normal function – which means that it does not work as well as a normal kidney. It is usually smaller than usual, and may have some cysts, which are like sacs filled with liquid. Find out more…

Renal hypoplasia

Renal hypoplasia (or kidney hypoplasia) means that part of a kidney does not fully develop in the womb. The kidney may only be slightly smaller than usual or it may be tiny. Because of its size, it may not work as well as a normal-sized kidney. Find out more…

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Scoliosis

Advice on what you can do if you have scoliosis or if you have just been diagnosed with it. Find out more…

Sickle Cell Disease

Advice for young people living with sickle cell disease. You are not alone. Click here for more information.

Spina bifida

Spina bifida literally means ‘split spine’. A fault in the development of the spinal cord and surrounding bones (vertebrae) leaves a gap or split in the spine. The spinal cord has not formed properly, and may also be damaged. Find out more

Syncope

Syncope (pronounced sin-co-pee) is a medical term for a blackout that is caused by a sudden lack of blood supply to the brain. Reflex syncope is one of the most common forms of syncope. Find out more…

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Thalassaemia

Thalassaemia is a complex condition affecting the blood that requires constant monitoring and treatment. However, it is no longer just a disease of childhood; with our current level of knowledge, of treatment, of support and care there is no reason for a young person with thalassaemia to not reach their full potential.

Tuberous Sclerosis

An estimated 1 million people worldwide have TSC. Some will be diagnosed with TSC very early in life whilst others may not be diagnosed until later childhood, adolescence or adulthood. Find out more…

U

Urinary tract infection (UTI)

A urinary tract infection (UTI) is a common infection that may cause you pain when you pee. Sometimes it can result in a kidney infection. Find out more…

V

Von Willebrand Disease

Von Willebrand disease is the most common type of bleeding disorder: it’s estimated that around 1% of the world population may be affected. It affects the blood’s ability to clot and can cause symptoms such as easy bruising, nosebleeds, and heavy periods. It may also be hard to stop bleeding after injury or surgery. Find out more…